tag:blogger.com,1999:blog-6625063692016394794.post3941811769390303004..comments2023-04-11T01:34:55.737-07:00Comments on Healer in your Heart: Be StillVanessahttp://www.blogger.com/profile/10263480829908968353noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-6625063692016394794.post-6685325951463258522013-03-23T09:48:14.832-07:002013-03-23T09:48:14.832-07:00Of course! I just added myself to your followers, ...Of course! I just added myself to your followers, so that you may email me. I should tell you now, however, that my journey was quite opposite, very "Western" and somewhat irresponsible. I remember looking into the Burzynski clinic, but my insurance wasn't going to pay for it, and it would have been a plan B. I was very young and lucky enough to be employed with a great job w/ full health insurance coverage. But I was also naive, my mother had recently passed, my father lived 3,000 miles away, and I blindly followed the advice of my doctors at New York Hospital and Memorial Sloan Kettering. I did not take such great care of myself after they told me I would die within a year or so. Before the BT I lived an extremely healthy lifestyle, but after I was scared and in denial. I just tried to have fun - ALL THE TIME! I want to offer you some hope as a survival story, but I don't want to upset you either because every person is different and so are their cells. I absolutely believe you are making ALL the right choices! (let me know if you have trouble contacting me - I'm not really sure how this works)Sally Shttps://www.blogger.com/profile/06755583914689082524noreply@blogger.comtag:blogger.com,1999:blog-6625063692016394794.post-27844706488627369252013-03-23T07:51:35.557-07:002013-03-23T07:51:35.557-07:00Sally, would it be possible to reach you directly?...Sally, would it be possible to reach you directly? I would like to hear more about this genetic condition, and ask you what treatments you used for your brain and breast cancers.Vanessahttps://www.blogger.com/profile/10263480829908968353noreply@blogger.comtag:blogger.com,1999:blog-6625063692016394794.post-78012358288822375172013-03-22T22:16:56.533-07:002013-03-22T22:16:56.533-07:00Vanessa, you do not know me. I stumbled across you...Vanessa, you do not know me. I stumbled across your blog by accident. Let me start by saying I'm so sorry your family has to face this horrible challenge, and that you are confronting such negativity while fighting so hard. <br />I had a high grade anaplastic oligoastrocytoma 13 years ago at the age of 23. When I was 31, I was diagnosed with an unrelated, high grade form of breast cancer. I'm 36 1/2 today. I had several genetics tests done after the BC diagnosis, and they found that I had a rare genetic disorder called Li-Fraumeni Syndrome (LFS) which makes me predisposed to certain types of cancer at a relatively early age. LFS is rare, but I'm wondering if Adam has ever been tested? Both of his cancers fall under the LFS umbrella and he is certainly young. If he has a history of cancer in his family he may want to consider looking it up and being tested, if he hasn't already. LFS is passed down through one parent - offspring have a 50% chance of acquiring it and, if they have it, need to be monitored regularly for early detection. I wish you all the best and hope your kids have a wonderful and "normal" spring break! Blessings, SallyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6625063692016394794.post-28680032942464133172013-02-16T17:06:34.583-08:002013-02-16T17:06:34.583-08:00Vanessa, my heart hurts over all the pain your fam...Vanessa, my heart hurts over all the pain your family is going through. As I read this post I realized that you MUST read a post by Mary Lenaberg at Passionate Perseverance: http://passionateperseverance.blogspot.com/2011/11/chapter-13-acceptance.html Make SURE that when you get to the end of the post you click to "read more" and to get to the next post because it is important to her story. I'll be praying for your family and I would love to know what you think of Mary's story.Marcy K.https://www.blogger.com/profile/17472222489998267686noreply@blogger.com